Partnering with communities

 

Our approach

Our community partners are helping us co-design approaches that meet their communities' needs. This means we work with a group of community members to figure out how to best reach, talk with, and invite people from their community to take part in OurDNA.

Working together, we hope to engage thousands of diverse Australians to be part of OurDNA and shape the future of healthcare.

We’re also working closely with representatives from the multicultural sector who are advising us on program-wide decisions. With the Australian Multicultural Health Collaborative, an initiative of the Federation of Ethnic Communities' Councils of Australia, we’ve brought together a group of advisors who are helping us to ensure community interests are central to OurDNA, providing input on things like how we share data.

Learn more about the OurDNA Multicultural Consultation Group

 

The difference you’ve made

Partner with OurDNA
Partner with OurDNA

Are you interested in learning about and helping the OurDNA program to advance medical research that might benefit your community members? Please let us know by filling in this form. A member of the team will be in contact with you soon.

Please select your preferred level of participation

Our community partners

Many organisations and individuals are already working with OurDNA. Click the button to view all of our partners and learn more about them.

Our co-design reports

Co-design is central to OurDNA. Our workshop reports are just part of a process of working in partnership with community members to make sure that the program meets their needs.

Read more about our co-design process

 

Filipino community

Vietnamese community

 

Visit OurDNA's Instagram Account
Visit OurDNA's Facebook Page

Upcoming events

Join us at a community event to learn more and be part of the change.

Do you have questions?

If you can’t find the answer you’re looking for, contact us.

OurDNA o se galuega faailoga a le Centre for Population Genomics. O le Nofoaga Autu ua faatuina ia:

  • Aofia ai nu'u e le'i fa'atusalia i su'esu'ega faa-genomic;
  • Su'esu'e le aoga ma le soifua maloloina talafeagai o kenera o le tagata; ma
  • Fa'aleleia le su'esu'ega ma togafitiga o fa'ama'i o le kenera.

O le Nofoaga Autu ose fuafuaga faatasi e le o maua - ni-tupe mama mai le lua o a'oga su'esu'e ta'utaua a Ausetalia: o le Garvan Institute of Medical Research i Sini ma le Murdoch Children’s Research Institute i Melepone.

OurDNA e faatupeina e:  

  • Nofoaga autu mo le fa'alapotopotoga faavae mo Population Genomics:  Fa'alapotopotoga o Su'esu'ega Fa'afoma'i i Garvan ma le Fa'alapotopotoga o Su'esu'ega o Tamaiti i Murdoch.
  • Tagata e foa'i tupe i la matou suesuega
  • Fa'aputugatupe mo Sue'su'ega Fa'afoma'i a le Malo Ausetalia ile lumana'i (foa'i 2015969) (CIA Daniel MacArthur, 2022-2027) mai le Misiona a le Soifua Maloloina mo le Lumana'i a le Genomics ma le Soifua Malolina Fa'aleatunu'u Pulega o Su'esu'ega Fa'afoma'i (NHMRC fesoasoani i tagata sailiili 2009982 (CIA Daniel MacArthru, 2022-2026}. O mea uma o lo'o i totonu o lenei pepa fa'asalalau ole matafaioi a le tusitala ma e le atagia ai manatu o le Commonwealth of Australia po'o le NHMRC.
  • O le polokalame OurDNA e maua mai foi le lagolago mai le Google’s Digital Future Initiative. Faitau atili e uiga i le galulue fa'atasi iinei.

Ioe, ua fa'amaonia le poloketi a le OurDNA e le Human Research Ethics Committee (HREC) o le Royal Children’s Hospital. O le fa'asinomaga mo la matou fa'atagaga fa'apitoa e: HREC/91986/RCHM-2023

Afai e iai ni au fesili e uiga i le OurDNA fa'atagaga fa'apitoa, pe manao e talanoa i se tasi e tuto'atasi mai le vaega su'esu'e, e mafai ona e fa'afeso'otai le Faatonu o Su'esu'ega i le Falema'i o Tamaiti. E mafai ona e telefoni i le Fa'atonu i le (03) 9345 5044 poo imeli latou i le rch.ethics@rch.org.au

OurDNA o loo fa'atupeina nei seia oo i le faaiuga o le 2027. O le fa'amoemoe e fa'aauau la matou galuega seia o'o ina avea uma sui fa'alapotopotoga i Ausetalia mo le OurDNA database ma fa'ataitaiga ia avanoa mo le umi e mafai ai mo tagata su'esu'e.

Ina ia auai i le OurDNA, e tatau ona:

  • I luga atu i le 18 tausaga le matua
  • Ia e agava'a mo Pepa Falema'i (Medicare)
  • Mafai ona fai se fa'ataitaiga o le toto i Victoria poo New South Wales
  • Fa'ailoa e le tagata lava ia e iai se tupuaga mai se tasi o nuu e lei fa'ailoina i punaoa faa kenera. Asiasi i lenei itulau e siaki poo fea le nu'u o loo matou galulue malosi fa'atasi.
  • E le mafai e tagata ona auai pe afai oi latou po'o se tasi o latou aiga vavalalata e iai se ma'i ogaoga o le soifua maloloina, pei o le cystic fibrosis po'o le muscular dystrophy. E le aofia ai tulaga masani e pei o le ma'i inflammatory bowel, kanesa po'o le ma'i suka.

I le taimi nei, o tagata Ausetalia mai vaega o augatuaa o loo mulimuli mai o loo i lalo o le sui poo le misi atoa i mea tau punaoa o le:

  • East African (e.g., Ethiopian, Kenyan, Mauritian, Somali, South Sudanese, ma Sudanese)
  • North African ma Middle Eastern (e.g., Assyrian, Chaldean, Egyptian, Iranian, Iraqi, Jordanian, Lebanese, Palestinian, Syrian, ma Turkish)
  • Oceanian (e.g., Fijian, Papua New Guinean, Samoan, ma Tongan)
  • South-East Asian (e.g., Cambodian, Filipino, Indonesian, Malay, Thai, ma Vietnamese)

Ua ta'u mai foi e foma'i Ausetalia ia i matou e faigata ona maua fa'amatalaga e uiga i nei auga tuaa i vaega i punaoa ma fa'amaumauga latou te fa'aaogaina e su'esu'e ai tulaga fa'a kenera ma le soifua maloloina.

O lo'o galulue le OurDNA e fa'afeso'otai ma nu'u e le o fa'aalia i punaoa fa'avae. Asiasi i lenei itulau e siaki po'o fea le nu'u o loo matou galulue malosi fa'atasi.

E ui ina matou le galulue sa'o i totonu o nuu Indigenous, ae o matou o se sui malosi o ALIGN ma CONNECT consortia, taumafaiga a le atunuu o loo taitaia e le atunuu o loo galulue e faamalosia tagata Apoliki ma Torres Strait Islander i vailaau ma su'esu'ega.

Matou te tu'uina atu fautuaga fa'apitoa mo le atina'eina o fa'amaumauga fa'apitoa mo  fa'alapotopotoga talafeagai fa'ale-aganu'u, teuina lelei fa'aleaganu'u, pulega, ma le fefa'asoasoa'i o fa'amatalaga genomic e manuia ai tagata Indigenous Australians.

Vaaiga o FAQs uma