Cakacaka vata kei na veitikotiko

 

Veika keitou na cakava

O ira na veitabana eso keitou cakacaka vata, era veitokoni tiko ena kena vakayacori eso na sala mera vukei kina na veika era gadreva ena duidui itikotiko. E kena ibalebale me na tuvanaki na veivosaki kei ira na duidui ikotiko me kilai kina na sala vinaka duadua me caka kina na veitaratara vei ira, veivosaki kei ira, se sureti ira mera vakaitavi ena OurDNA.

Nida vakayacora vata na sasaga yaga oqo, keitou nuitaka nira na mai vakaitavi tale ga e vica na udolu na duikaikai e Ositerilia ena OurDNA ena vuku ni veivakatorocaketaki ni veika vakavuniwai. 

Keitou cakacaka vata tale ga vakavoleka kei ira na matataki ira na duidui vanua era vakasalataki keitou tiko ena vakatulewa e tara raraba na porokaramu oqo. Ena veitokoni ni Australian Multicultural Health Collaborative, e dua na sasaga ni Federation of Ethnic Communities' Councils of Australia, keitou kauta vata mai e dua na iwase ni daunivakasala era vukei keitou tiko ena kena laurai ni yaga raraba ena itiotiko na veika e cakava na OurDNA, eratou soli ivakasala ena so na ka me vaka na sala keitou wasea kina na itukutuku.         

Vulica e levu tale na ka me baleta na OurDNA Multicultural Consultation Group

 

Na veika o sa cakava rawa

Cakacaka vata kei OurDNA
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Ira keitou cakacaka vata ena itikotiko

E levu na isoqosoqo kei na tamata yadua era sa cakacaka tiko kei OurDNA. Tabaka qo mo raici ira kece era cakacaka vata kei keitou qai vulica e levu tale na ka me baleti ira. 

Na veika era ripotetaka na timi ni veitaratara vei ira na lewenivanua 

Na timi ni veitaratara vei ira na lewenivanua e tiki bibi sara ga ni OurDNA. Na ripote eso e vauca na neitou veivakavulici,  e tiki ga ni neitou cakacaka vata kei na dui lewe ni tikotiko me keitou vakadeitaka ni na ganiti ira na porokaramu qo.

Mo wilika e levu tale na ka me baleta na tuvanaki ni veivakauvulici vei ira ena duidui itikotiko

 

Lewe ni Filipino community

Kai Vietnam 

 

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Soqo namaki 

Mo mai vakaitavi talega ena soqo e dau caka ena duidui itikotiko mo vulica e levu tale na ka se mo mai veivuke sara ga ena veisau.

E tiko e dua na nomuni taro? 

Kevaka o sega ni raica na ka o vaqara tiko, veitaratara mai vei keitou.

Na OurDNA se qai isevu ni sasaga ni Valenivolavola se Centre for Population Genomics. Na Valenivolavola qo e tuvanaki me:

  • Vukei ira na veitikotiko e sega ni dua e matataki ira ena tabana vakavuniwai e vauca na vakadidike ni kilai ni veika e baleta nodra yatukawa;
  • Vakadikeva na sala e veisemati kina ena bula ni tamata ena kena itukutuku e tu ena nona genes; kei na  
  • Vakavinakataki na kena qaravi kei na wali ni so na mate.

Na veiqaravi ni vale ni volavola oqo, e sega ni namaki me rawa kina na tubu vaka i lavo ka rau sema kina e rua na tabana ni vakadidike kilai levu e Ositerelia:
na Garvan Institute of Medical Research e Serene kei na Murdoch Children’s Research Institute e Malevani.

Na OurDNA e vakailavotaka:

  • O koya sara ga na rua na vanua e cicivaka na Centre for Population Genomics’: Garvan Institute of Medical Research kei Murdoch Children’s Research Institute
  • Ira era cau mai ena sasaga qo
  • E vakarautaka tale ga na Australian Government’s Medical Research Future Fund (MRFF) na veivuke vakailavo se grant 2015969 (CIA Daniel MacArthur; 2022-2027) mai na Genomics Health Futures Mission kei na National Health and Medical Research Council (NHMRC) investigator grant 2009982 (CIA Daniel MacArthur; 2022-2026). Na lewe ni veika e tabaki qo e nona sara ga o koya e vola qai sega ni vakamacalataka tiko ga na rai ni Matanitu o Ositerelia se Commonwealth se na NHMRC.
  • Na porokaramu ni OurDNA e tokona tale ga na sasaga ni Google’s Digital Future Initiative. Mo wilika e levu tale na ka e vauca na tikina qo eke.

Io, na OurDNA e sa vakadonui vakaivola ena Human Research Ethics Committee (HREC) ena Royal Children’s Hospital. Na ivakadinadina ni veivakadonui qori na: HREC/91986/RCHM-2023

Kevaka e dua na nomu taro me baleta na veivakadonui ni OurDNA, se o via vosa vua e dua e sega ni tiki ni kena timi ni vakadidike, o rawa ni veitaratara vua na i liuliu ni Vakadidike ena Royal Children’s Hospital. O rawa ni qirita na i liuliu ni veiqaravi ena tabana oqo ena (03) 9345 5044 se imeli vua ena rch.ethics@rch.org.au

E vakailavotaki na OurDNA me lai yacova sara na yabaki 2027. E neitou inaki me toso tiko ga na OurDNA me yacova nira sa matataki taucoko na veitikotiko e Ositerelia ka maroroi na kedra itukutuku ka tiko tale ga na kena baqe ni sabolo ena dua na gauna balavu, me na vukei ira na daunivakadidike era na muri mai.

Mo vakaitavi ena OurDNA, ena vinakati:

  • Mo sa yabaki 18 se sivia
  • Rawa ni soli vei iko na Medicare
  • Mo solia rawa na sabolo ni dra e Victoria se New South Wales
  • Mo kilai ni nomu yatukawa se vanua o cavutu mai kina era sega ni qaravi vakavinaka se tu na kedra itukutuku mera dikevi kina ena veika e vauca na genetic. Rai ena tabana qo mo raica kina na isoqosoqo cava so keitou cakacaka vata tiko.
  • Ena sega ni vakaitavi rawa e dua ke o ira se dua na lewe ni nodra vuvale voleka e tarai ira na mate ni kawa, me vaka na cystic fibrosis se muscular dystrophy. Qori e sega ni okati kina na ituvaki me vaka na vuce ni wawa, kenisa se na matenisuka.

Ena gauna qo, o ira na kai Ositerelia mai vei ira na yatukawa e sega ni levu na kedra itukutuku e maroroi tu se sega sara ga na kedra itukutuku ni yatukawa:

  • Tokalau kei Aferica (me vakataki, Ethiopia, Kenyan, Mauritian, Somali, Ceva kei Sudan, kei Sudan)
  • Vualiku kei Aferika kei na Tokalau e Loma (me vakataki, Asiria, Kalitia, Ijipita, kai Irani, Iraki, kai Joritani, Lepanoni, Palesitaina, Sirian, kei Taki)
  • Oceanian (me vakataki, Viti, Papua New Guinean, Samoa, kei Toga)
  • Ceva ira kei Esia (me vakataki, Cambodian, Filipino, Indonesian, Malay, Thai, kei Vietnamese)

Era kaya na vuniwai e Ositerelia ni dredre dina me kunei na itukutuku ni yatukawa ni wasewase qo qai sega ni levu na vanua e kau mai kina na itukutuku ni kena qaravi eso na kedra mate.

Na OurDNA e cakacaka tiko kei ira e vica na lewenivanua era sega ni maroroi tu na kedra itukutuku vakawa me vulici kina na veika era sotava. Rai ena tabana qo mo raica kina na isoqosoqo cava so keitou cakacaka vata tiko.

E macala ni keitou cakacaka voleka sara kei ira na itaukei, keitou lewena tale ga na ALIGN kei na CONNECT consortia, qo e qaravi ira vakatabakidua na itaukei ena nodra vakauqeti o ira na kai Aborigines kei na kai yanuyanu ni ena veiqaravi ni wainimate kei na vakadidike.

Keitou veivakasalataki ena kena tauyavutaki na ituvatuva ni itukutuku me baleta na kawa ena vuku ni veiqaravi raraba, e veiganiti vei ira na duikaikai, kena maroroi vakavinaka, qaravi kei na kena wasei na itukutuku ni genomic me yaga vei ira e Ositerelia taucoko.

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