E cakacaka tiko na Centre for Population Genomics ena tabana ni vakadidike kei na iliuliu ni isoqosoqo me vakarautaka na porokaramu ni OurDNA.
Na Centre for Population Genomics erau cakacaka vata kei na sasaga ni matanitu ni Garvan Institute of Medical Research kei na Murdoch Children’s Research Institute. Na Tabani veiqaravi era liu sara ga ena vakadidike e vauca na itukutuku ni kawa, e rabailevu tale ga na vakaddidike e vakayacori, kena kumuni na itukutuku vakasaenisi, bula raraba ni lewenivanua kei na kena tatara ena tabana ni bula.
Ena vuku gona ni Centre for Population Genomics, o OurDNA e marautaka qai mai lewena tudei na ALIGN kei na CONNECT consortia. Na CPG e vakarautaka na veivuke ni misini ena kena dikevi na itukutuku ni genomic kei na ituvatuva eso e nanumi kina na lewenivanua kece, veivanua era cavutu mai kina kei na kena dokai ena kena maroroi, qai wasea na itukutuku qori me yaga vei ira na iTaukei kei Ositerelia.
Na Centre for Population Genomics cakacaka vata kei Google me tokona na vakadikevi ni kawa kei na nodra tarai na dui itikotiko e Ositerelia. Na CPG e cakacaka vata ke ina Tabana ni Vakadidike ni Google me buli kina eso na iyaragi ena dikevi ni yatukawa. Na iyaragi qo ena vukei ira na vuniwai kei na daunivakadidike ena kena vulici na veisau ena DNA vei ira ena itikotiko qai vakarautaki na veivuke e vauca na dikevi ni nodra yatukawa o ira na sega ni se bau dikevi tu.
Ena veidinadinati qo, sa rawa kina vei Google me tokona eso na sasaga ni OurDNA ena itikotiko. E cakacaka vakavoleka sara tiko na OurDNA kei veivuke ni vakadewa nei Google, ira na daunivakadewa era kenadau, kei ira na kila na dui vosa mera vakayagataka ena vakarautaki ni itukutuku ni vakadidike qai vakarawarawataka na vakaitavi ena vakadidike vei ira na duikaikai.
Na porokaramu ni OurDNA e okati kina na timi e nona vakatabakidua na vakadidike ya na nodra dikeva na sala ena yaga kina vei ira na duikaikai na porokaramu me vaka na OurDNA. Na cakacaka vata kei ira na daunivakadidike ena bioethics, veika vakailavo ni tabana ni bula, daunivakasala ni genetic, veitaratara kei ira na lewenivanua, kei na veika vakasaeinisi, na kena qo e dikeva na kena veiganiti, veitaratara kei ira eso, kei na veika yaga tale eso e vauca na porokaramu.
Na vakadidike e vakabibitaka na veitaratara kei na itikotiko kei ira era kenadau ena vakadidike ni genomis mera vakaitavi, wili kina na kean soli na veivakadonui kei na kena tauri ma macala ni genomics. Ena dikeva na sala era vakayagataki kina na genomics ni tabana ni bula me yaga vei ira na duikaikai ena itikotiko.
Na veika e dikevi rawa ena cakacaka qo ena veivuke ena kena vakavinakataki na porokaramu ni OurDNA ena veigauna mai liu. E vakarautaka tale ga na veidusimaki ena neitou vakadidike eso ni genomics ni cakacaka vata kei an duikaikai ena itikotiko.
Keitou cakacaka vata kei:
The Centre for Population Genomics partners with Google to support genetic research and community outreach in Australia. CPG works with Google Research to build some of the tools we use to study genetic data. These tools will help doctors and researchers to study changes in community members’ DNA and make better genetic resources for underrepresented groups.
Through this partnership, Google supports some of OurDNA’s community engagement activities. OurDNA is also working with Google translation tools, accredited translators, and linguists to evaluate innovative approaches to translation of genetic research materials and make participating in research easier for multicultural community members.
The OurDNA program includes a dedicated research stream that is looking at how programs like OurDNA can better meet the needs of multicultural communities. Partnering with researchers with expertise in bioethics, health economics, genetic counselling, social research, and implementation science, this stream examines the ethical, social, and practical aspects of the program.
The research projects are exploring community perspectives and experiences of genomics research participation, including consent and receiving genomics results. It will also investigate how to make genomic healthcare better for multicultural communities.
The findings from this stream of work will inform future improvements to the OurDNA program. It will also provide guidance for other genomics research projects working with multicultural communities.
We’re partnering with:
Na OurDNA e cakacaka vata tiko kei na Australian Genome Research Facility (AGRF) me tuvanaki e dua na ituvatuva ni kena ‘wiliki’ na sabolo ni DNA e soli vei ira na lewenivanua. Me vaka e tuvanaka tiko na veika e vakayacori, na AGRF e vakayagataka na monalivaliva me dikeva qai kauta mai na veika vouvou e laurai ena gene me tokana kina na vakadidike vakavuniwai kei na tabana ni bula.
Na OurDNA e cakacaka vata kei na Australian Red Cross Lifeblood me vakarabailevutaka na kumuni ni dra kei na genomics. E nodra cakacaka tale ga na kena tauyavutaki eso na sala veiganiti mera sureti kian a vakaitavi ena OurDNA e duatani toka na nodra dra mera cautaka nodra dra me rawa ni tiko kina eso na dra e dredre me kunei.
Na FECCA kei na Australian Multicultural Health Collaborative e isoqosoqo bibi dina, era veivuke ena veitaratara vei ira na duikaikai ena nodra veivakasalataki kei na veidusimaki ena porokaramu ni OurDNA. Matataka tiko na neitou soqosoqo e tosoya tiko na ka kece, FECCA kei na Collaborative e veivakasaltaki tale ga ena itikotiko ra qai liutaka tale ga na veika e yaco tiko. Na Collaborative e veivuke ena liutaki ni OurDNA Multicultural Advisory Group, e vakarautaka na ivakasala va kenadau me baleta na lawa ni porokaramu kei na veika e vakayacori. Na ilawalawa e veivakasalataki ena ulutaga e okati kina na sala e vakarautaki kina na OurDNA ena vakadidike kei na sala e wasei kina vei ira na itkotiko.
E cakacaka vata tiko kei na timi Monash University’s Precision Medicine kei Our DNA me rawa ni kumuna qai maroroya na sabolo ni dra era cautaka na lewenivanua. Na Monash Presicion Medicin e wasewasea na dra ena duidui sabolo, me vaka na plasma, sela kei na buffycoat, e maroroya tale ga na dra taucoko. Kena ikuri, era vakaduiduitaka na DNA mai na sela ni dra taucoko, wili kina na sabolo e sa vakarautaki oti mai Westmead. Na sabolo e soli ena OurDNA e maroroi tu vakadede e Monash.
Na OurDNA e cakacaka vata kei na Sonic Pathology kei na nodratou timi era vakavulici vinaka ena kumuni ni dra ena kena vakamacalataki na porokaramu. E sa vakarautaka e levu na vanua ni kumuni dra e Serene o Sonic (e kilai me Douglass Hanly Moir Pathology) kei Malevani (e kilai me Melbourne Pathology). O ira na lewe ni itikotiko era via vakaitavi ena OurDNA era rawa ni gole ena Melbourne Pathology se Douglas Hanly Moir Pathology ena dua ga na gauna era vinakata mai na Moniti ina Lotulevu.
Na OurDNA e cakacaka vata kei WeGuide ena kean vakarautaki e dua na veidusimaki ena monalivaliva e taqomaki, nuitaki qai vakadewataki ena duidui vosa me uqeta na vakaitavi kei na vakadidike. Na Weguide e sa vakadonui vakalawa ena sala era veivosaki kina na lewe ni itikotiko kei ira na kenadau qai vakarautaki veiqaravi tale eso me tokona kina na tabana ni bula kei na isoqosoqo ni vakadidike.
Na OurDNA e cakacaka vata kei Westmead Institute ni vakadidike vakavuniwai me kumuna qai maroroya na sabolo ni dra era solia na lewenivanua. Na Westmead Biobank e wasewasea na dra ena duidui sabolo, me vaka na plasma, sela kei an buffycoat, ia e maroroya tale ga na dra taucoko. Na sabolo e kumuni mai Westmead e maroroi vakalekaleka ga, me vaka ni dau vakau na sabolo ina Monash University me maroroi kina vakadede.
Kevaka o sega ni raica na ka o vaqara tiko, veitaratara mai vei keitou.
Na OurDNA se qai isevu ni sasaga ni Valenivolavola se Centre for Population Genomics. Na Valenivolavola qo e tuvanaki me:
Na veiqaravi ni vale ni volavola oqo, e sega ni namaki me rawa kina na tubu vaka i lavo ka rau sema kina e rua na tabana ni vakadidike kilai levu e Ositerelia:
na Garvan Institute of Medical Research e Serene kei na Murdoch Children’s Research Institute e Malevani.
Na OurDNA e vakailavotaka:
Io, na OurDNA e sa vakadonui vakaivola ena Human Research Ethics Committee (HREC) ena Royal Children’s Hospital. Na ivakadinadina ni veivakadonui qori na: HREC/91986/RCHM-2023
Kevaka e dua na nomu taro me baleta na veivakadonui ni OurDNA, se o via vosa vua e dua e sega ni tiki ni kena timi ni vakadidike, o rawa ni veitaratara vua na i liuliu ni Vakadidike ena Royal Children’s Hospital. O rawa ni qirita na i liuliu ni veiqaravi ena tabana oqo ena (03) 9345 5044 se imeli vua ena rch.ethics@rch.org.au
E vakailavotaki na OurDNA me lai yacova sara na yabaki 2027. E neitou inaki me toso tiko ga na OurDNA me yacova nira sa matataki taucoko na veitikotiko e Ositerelia ka maroroi na kedra itukutuku ka tiko tale ga na kena baqe ni sabolo ena dua na gauna balavu, me na vukei ira na daunivakadidike era na muri mai.
Mo vakaitavi ena OurDNA, ena vinakati:
Ena gauna qo, o ira na kai Ositerelia mai vei ira na yatukawa e sega ni levu na kedra itukutuku e maroroi tu se sega sara ga na kedra itukutuku ni yatukawa:
Era kaya na vuniwai e Ositerelia ni dredre dina me kunei na itukutuku ni yatukawa ni wasewase qo qai sega ni levu na vanua e kau mai kina na itukutuku ni kena qaravi eso na kedra mate.
Na OurDNA e cakacaka tiko kei ira e vica na lewenivanua era sega ni maroroi tu na kedra itukutuku vakawa me vulici kina na veika era sotava. Rai ena tabana qo mo raica kina na isoqosoqo cava so keitou cakacaka vata tiko.
E macala ni keitou cakacaka voleka sara kei ira na itaukei, keitou lewena tale ga na ALIGN kei na CONNECT consortia, qo e qaravi ira vakatabakidua na itaukei ena nodra vakauqeti o ira na kai Aborigines kei na kai yanuyanu ni ena veiqaravi ni wainimate kei na vakadidike.
Keitou veivakasalataki ena kena tauyavutaki na ituvatuva ni itukutuku me baleta na kawa ena vuku ni veiqaravi raraba, e veiganiti vei ira na duikaikai, kena maroroi vakavinaka, qaravi kei na kena wasei na itukutuku ni genomic me yaga vei ira e Ositerelia taucoko.
